Last week, I spoke with two individuals who both want to convene meetings with “thought leaders” in our space to spark conversations about how we can better support and help family caregivers.
The first individual is a family caregiver deep into the experience (the Entrenched Caregiver Stage), which he describes as completely disrupting his life. During our conversation, he regularly expressed frustration, overwhelm and stress about his experience.
The second colleague is a former family caregiver, whose experience ended more than 10 years ago. He’s so far removed from the experience that he can’t understand the reality of today’s experience. (Our conversation inspired last week’s Soul Break from Someone Telling Us to Change Our Narrative.)
During both conversations, neither one referred to a poll or a survey or ongoing conversations with family caregivers about they want and need to improve their experience.
I also realized I haven’t asked you this question for more than four years.
So, I’d love to know: What help and support do family caregivers need?
Please share your thoughts if you currently care or previously cared for a family member or friend. The survey, which takes about five minutes, asks for your perspectives on ideas to improve the experience in our homes and our communities, in our families and for ourselves. The goal of the survey is to share some ideas for your feedback so we can create better ones.
I’ll share survey results and our next steps on a regular basis.
Tell us: What help and support do family caregivers need?
(Please also share the survey with everyone you know. The more responses, the better we’ll connect to solutions that really work.)