Absolutely! At the base of the systems is a lack of concern for care. It can't be entered onto a corporate spreadsheet and it flies in the face of individualism. I have been starting to learn about the 'care economy' and there is such a loooong way to go. It's not that we aren't yelling - it's that we are not heard.
We are definitely yelling, Beth! I wonder if they hear us but just don't want to make the changes that will help us. The systems are set up to serve the systems. The systems work for the systems so why change them? It's frustrating, aggravating and demoralizing.
Every caregiver I know has employed a ‘workaround’, a spreadsheet, a way to get information..we don’t need productivity organisers. The minimum we need is a system that we can trust and communications that are reliable, fast and accurate to ALL health stakeholders for the person. Often we have to chase, follow up and close the loop to ensure timely actions. Don’t get me started on Emergency situations. I count our blessings for the doctors and specialist nurses that we have built relationships with along our cancer journey.
Absolutely! At the base of the systems is a lack of concern for care. It can't be entered onto a corporate spreadsheet and it flies in the face of individualism. I have been starting to learn about the 'care economy' and there is such a loooong way to go. It's not that we aren't yelling - it's that we are not heard.
We are definitely yelling, Beth! I wonder if they hear us but just don't want to make the changes that will help us. The systems are set up to serve the systems. The systems work for the systems so why change them? It's frustrating, aggravating and demoralizing.
Every caregiver I know has employed a ‘workaround’, a spreadsheet, a way to get information..we don’t need productivity organisers. The minimum we need is a system that we can trust and communications that are reliable, fast and accurate to ALL health stakeholders for the person. Often we have to chase, follow up and close the loop to ensure timely actions. Don’t get me started on Emergency situations. I count our blessings for the doctors and specialist nurses that we have built relationships with along our cancer journey.
You are spot on, Victoria. We are productivity experts. It's just that we have to do soooo much legwork that the systems simply won't do. It's awful.