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Beth Campbell Duke's avatar

Thank you for this, Denise. I am in the process of trying to document what I do and the impact(s) it's had on me and my capacity to engage with friends and work.... because (get this...) someone is about to ask. That someone is an insurance company and how sad is that? I want to have the best, most robust, answer I can give so that they better understand how I have been impacted and how other caregivers have been impacted as well.

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a.homecareguy's avatar

I like the concept of the caregiver navigating the stormy waters of the systems to provide care. They are also the systems we have to navigate through life. Throughout the 11 years I have owned my home care agency, I have worked with family caregivers as they struggle with all of these systems. I never leave a request for help with out a referral (or an assessment). Sometimes I am able to refer them to someone that can help with the issue at hand (a lawyer for estate planning, In Home Supportive Services for those on Medi-Cal that can't afford my services, the county Area Agency on Aging, etc. ).

I would define the systems a little differently, but the framework is helpful for caregivers to think about their new role as they face all of these systems.

Thanks.

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