11 Comments

-being the center of gravity amidst all of the uncertainty.

Expand full comment
author

I love this Mike!! The center of gravity. Wow. Gives me goose bumps.

Expand full comment
Jun 2Liked by Denise Brown

Going home and making dinner instead of running away

Expand full comment
author

That says soooo much. Thank you.

Expand full comment
Jun 2Liked by Denise Brown

It feels so good and makes me cry to be thanked, to read a post like yours. Thank you.

Expand full comment
author

You are welcome!! You deserve thanks and appreciation every day and throughout the day.

Expand full comment

Thanks Denise. Here's a few more:

- navigating through / distracting our loved ones from the uncertainty, limbo-state between tests/investigations and results. Here in the UK that can be weeks.

- closing loops/chasing communication between medics, between family & friends (who may also have health issues), checking for appointments

- curating moments of giggles and fun

- managing house-admin, repairs, finances, washing, cleaning, bed-making., watering plants, shopping tailored to needs

- blocking unwanted calls, checking all bills, ensuring devices are 'charged'

- planning finances/trying to work

I could go on but .....thanks for the tulips ;-)

Expand full comment
author

YES!! Love "curating moments." Thanks for these and for doing these! Our list really does go on and on.

Expand full comment

I remember watching part of your video-cast on systems that we interface with - it's slightly different here in the UK, do you have an article I can link to on that? I want to highlight just how many, how much and how varied our communication has to be. Being the buffer and translator can induce claustrophobia!

Expand full comment
author

Here you go: https://www.careyearsacademy.com/17-caregiving-systems/ If you are open to sharing your experiences navigating the systems, you can schedule time to record an interview with me. (We can keep the recording private if you'd prefer.)

Expand full comment

Thanks, Denise - I appreciate the offer, but I won't have the time. Also, the UK services, resources and system is different to the US. I wanted to link to your work for my US readers. Thanks!

Expand full comment