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BayPoodle's avatar

Going home and making dinner instead of running away

Denise Brown's avatar

That says soooo much. Thank you.

BayPoodle's avatar

It feels so good and makes me cry to be thanked, to read a post like yours. Thank you.

Denise Brown's avatar

You are welcome!! You deserve thanks and appreciation every day and throughout the day.

Victoria's avatar

Thanks Denise. Here's a few more:

- navigating through / distracting our loved ones from the uncertainty, limbo-state between tests/investigations and results. Here in the UK that can be weeks.

- closing loops/chasing communication between medics, between family & friends (who may also have health issues), checking for appointments

- curating moments of giggles and fun

- managing house-admin, repairs, finances, washing, cleaning, bed-making., watering plants, shopping tailored to needs

- blocking unwanted calls, checking all bills, ensuring devices are 'charged'

- planning finances/trying to work

I could go on but .....thanks for the tulips ;-)

Denise Brown's avatar

YES!! Love "curating moments." Thanks for these and for doing these! Our list really does go on and on.

Victoria's avatar

I remember watching part of your video-cast on systems that we interface with - it's slightly different here in the UK, do you have an article I can link to on that? I want to highlight just how many, how much and how varied our communication has to be. Being the buffer and translator can induce claustrophobia!

Denise Brown's avatar

Here you go: https://www.careyearsacademy.com/17-caregiving-systems/ If you are open to sharing your experiences navigating the systems, you can schedule time to record an interview with me. (We can keep the recording private if you'd prefer.)

Victoria's avatar

Thanks, Denise - I appreciate the offer, but I won't have the time. Also, the UK services, resources and system is different to the US. I wanted to link to your work for my US readers. Thanks!

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Jun 2, 2024
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Denise Brown's avatar

I love this Mike!! The center of gravity. Wow. Gives me goose bumps.