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BayPoodle's avatar

Going home and making dinner instead of running away

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Denise Brown's avatar

That says soooo much. Thank you.

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BayPoodle's avatar

It feels so good and makes me cry to be thanked, to read a post like yours. Thank you.

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Denise Brown's avatar

You are welcome!! You deserve thanks and appreciation every day and throughout the day.

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Victoria's avatar

Thanks Denise. Here's a few more:

- navigating through / distracting our loved ones from the uncertainty, limbo-state between tests/investigations and results. Here in the UK that can be weeks.

- closing loops/chasing communication between medics, between family & friends (who may also have health issues), checking for appointments

- curating moments of giggles and fun

- managing house-admin, repairs, finances, washing, cleaning, bed-making., watering plants, shopping tailored to needs

- blocking unwanted calls, checking all bills, ensuring devices are 'charged'

- planning finances/trying to work

I could go on but .....thanks for the tulips ;-)

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Denise Brown's avatar

YES!! Love "curating moments." Thanks for these and for doing these! Our list really does go on and on.

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Victoria's avatar

I remember watching part of your video-cast on systems that we interface with - it's slightly different here in the UK, do you have an article I can link to on that? I want to highlight just how many, how much and how varied our communication has to be. Being the buffer and translator can induce claustrophobia!

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Denise Brown's avatar

Here you go: https://www.careyearsacademy.com/17-caregiving-systems/ If you are open to sharing your experiences navigating the systems, you can schedule time to record an interview with me. (We can keep the recording private if you'd prefer.)

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Victoria's avatar

Thanks, Denise - I appreciate the offer, but I won't have the time. Also, the UK services, resources and system is different to the US. I wanted to link to your work for my US readers. Thanks!

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Jun 2
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Denise Brown's avatar

I love this Mike!! The center of gravity. Wow. Gives me goose bumps.

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